Organisation

Website

Cheshire & Merseyside Happy Hearts

The aim of Cheshire & Merseyside’s Happy Hearts website is to help you reduce your risk of stroke and heart attack by giving you lots of information and tips on keeping your heart happy.

We aim to help people to keep their hearts happy and lower their chances of having a heart attack or stroke.

To do this, the Cheshire and Merseyside Happy Hearts website will share local, practical information on:

• how to live healthily and stay well
• conditions that increase the chances of having a heart attack or stroke, such as;
• atrial fibrillation
• high blood pressure
• high cholesterol
• how and where you can get your numbers checked
• how you can help to manage and contol these conditions to lower your CVD risk

Healthier Lancashire & South Cumbria Healthy Hearts

Cardiac Risk in the Young

Preventing young sudden cardiac deaths through awareness, screening and research, and supporting affected families.

Blood Pressure UK (Charity)

Know Your Numbers campaign leaders

Heart UK

HEART UK is the UK’s only cholesterol charity, providing support, information and influencing services for families and health professionals.

British Heart Foundation

Our vision is a world free from the fear of heart and circulatory diseases. We raise money to research cures and treatments, so we can beat heartbreak forever.

Heartbeat

We are the North West’s leading cardiovascular prevention and rehabilitation charity, providing services for over 950 people every week. Based in Preston the charity has supported heart patients and those at risk for over 40 years.

LHCH Charity

Supports Liverpool Heart and Chest Hospital in three major areas.

• Purchasing the latest and best equipment and training for our dedicated medical staff
• Providing the additional amenities for our patients, their families and our staff that make the hospital a warm and welcoming environment
• Supporting ground breaking research that will help to change the way heart and lung diseases are treated and cured in the future

Children’s Heart Association

• Support heart children and young people, their families and friends
• Raise funds to support our activities & to buy equipment
• Make life a little easier during hospital visits & stays
• Share information and tips
• Have fun

Have a Heart Foundation

Based in Runcorn – charity.  Access to

• The Hearty Project (information to start teaching people to do CPR)
• CPR & AED training
• Defib leasing
• Testing machinery

SADS UK

The cardiac charity SADS UK aims to save lives, providing information, funding research and medical equipment to prevent premature sudden cardiac death. Working in the areas of Research, Prevention and Emergency Care lives have been saved as a direct result of the work of SADS UK. SADS UK holds the Annual National Lifesaver Awards to honour people who have saved lives in the community using CPR and the defibrillator.

From <https://www.sadsuk.org.uk/>

Little Hearts Matter

Welcome to Little Hearts Matter. The only national UK charity offering help to anyone affected by the diagnosis of single ventricle heart condition.

From initial antenatal diagnosis, through treatments and into life at home, the charity works with children, young adults and families to reduce the isolation, fear and lack of understanding created when a child is diagnosed as having half a working heart.

From <https://www.lhm.org.uk/>

Heartline

Heartline supports children with heart conditions and their families, whatever the condition, wherever it is treated.

From <https://www.heartline.org.uk/>

Down’s Heart Group (DHG)

Founded in 1988, Down’s Heart Group (DHG) is a trustee led charitable organisation, with a primary focus on the provision of information advice and guidance support for those with Down’s Syndrome and an associated cardiac condition, their families and carers at every stage of life from pre-natal diagnosis, through to adulthood.

DHG aims to provide unbiased, up to date facts, thus enabling individuals to make informed choices.  We’ve reproduced many of our information sheets on this website to directly help families or for professionals to use in supporting them. In addition, the Charity works collaboratively with other organisations in medical and disability areas to increase awareness and to represent the needs of DHG members. This includes working with a range of charities and the NHS.

DHG Trustees meet regularly online to undertake a regular review of DHG business, progress key activities and usually has one residential meeting per annum where trustees can meet face to face.

Our website provides an introduction to DHG, information and advice resources and details about our trustees, becoming a member of our charity and supporting DHG.  We hope you find it useful, however, it is only part of the specialised help available to parents and professionals, including one to one support.

From <https://dhg.org.uk/>

Cardiomyopathy

A one stop shop for everything Cardiomyopathy;-

• Information
• Support groups
• Treatment
• Emotional support
• Genetics
• Services available

Hearts4teens

Hearts4teens started back in 2005. We asked a group of young people from across the North West of England and North Wales who were growing up with a heart condition what information, help and support they needed. They came up with the idea of setting up a support group. We now have the following services set up to support young people: All of these services are run by the Adult Congenital Heart Nurse Specialists based at Manchester Royal Infirmary. They can be accessed by anyone growing up with a heart problem regardless of where they live or which hospital they attend.

• Hearts4teens youth group – who meet up about 4-5 times a year
• Text messaging service
• This website – www.hearts4teens.org.uk

 www.facebook.com/groups/hearts4teens/ (Right click and copy and paste link into a new tab and request to be a friend)

From <https://www.hearts4teens.org.uk/>

Pumping Marvellous

Heart Failure information, charity and campaigns. Adult and CYP. Get involved with a large number of transformation projects (Gm and CwM) to lend support and the patient voice.

Heart Valve Voice

Heart Valve Voice is a collection of people with real experiences of heart valve disease, including a multi-disciplinary group of experts in the field (cardiologists, cardiac surgeons, GPs), cardiac patient societies and patients.

Heart Valve Voice is the UK’s dedicated heart valve disease charity. We work with patients and clinicians to help increase the awareness of heart valve disease in the UK and improve diagnosis and treatment.

From <https://heartvalvevoice.com/>

Global Heart Hub

One of the fundamental aims of the Global Heart Hub is to identify and unite heart disease patient organisations across the world. We do this by creating disease specific alliances (global patient councils), who work together in their disease area. Collectively, these patient councils share a common purpose in addressing the challenges of cardiovascular disease.

We will raise awareness and understanding of heart diseases by sharing up-to-date information on treatment guidelines, best practices and patient experiences across the world. We believe global action is necessary to improve outcomes for all heart patients and their carers

The Aortic Dissection Charitable Trust

The Aortic Dissection Charitable Trust is the UK and Ireland charity uniting patients, families and the medical community in a shared goal of improving diagnosis, increasing survival and reducing disability due to aortic dissection.

We are bringing consistency of treatment across the whole patient pathway through:

• Increased access to education for medical professionals and patients in the UK & Ireland
• Working with those responsible for healthcare policy in the UK & Ireland to ensure that there is consistency in the provision of diagnosis for acute aortic dissection, specialised follow-up for survivors and access to clinical genetics for relatives
• Promoting funding for medical research into the detection, prevention, treatment and cure for aortic dissection

Arrhythmia Alliance

Arrhythmia Alliance (A-A): working together to improve the diagnosis, treatment and quality of life for all those affected by arrhythmias.

A-A is a coalition of charities, patient groups, patients, carers, medical groups and allied professionals. Although these groups remain independent, they work together under the A-A umbrella to promote timely and effective diagnosis and treatment of arrhythmias.

A-A provides support, information, education, and awareness to all those affected by or involved in the care of cardiac arrhythmias.