Background and developing the standard

An Information Standard is a formal guidance document which health and social care organisations must follow by law.

The accessible information standard tells organisations how they should ensure that disabled patients / service users and, where appropriate, carers and parents, receive information in formats that they can understand, and that they receive appropriate support to help them to communicate.

Approval of the Standard

A short update about the approval of the standard is available:Image of someone reading a book

 

On 24 June 2015, the new ‘accessible information standard’ was approved by the Standardisation Committee for Care Information (SCCI). The standard is known officially as SCCI1605 Accessible Information. An update has been published along with the Specification for the standard and supporting documents. The official Information Standards Notice (ISN) has also been published on the Health and Social Care Information Centre website.

Developing the accessible information standard

Image showing two people invovled in a conversationWe worked with lots of different people to develop the accessible information standard. This included patients, carers and service users who are d/Deaf or have some hearing loss, blind or have some visual loss, are deafblind, and / or who have a learning disability. It also included health and social care professionals and organisations, patient groups and communication professionals.

Consultation

From 13 August until 9 November 2014 there was a consultation on the draft accessible information standard. The consultation is now closed and the consultation report is available below.

As part of the consultation, we asked people what they thought about the draft accessible information standard.  The report of the consultation is available below in a range of formats:

We used what people told us as part of the consultation to write the final accessible information standard.

If you would like a copy of the consultation report in an alternative format such as braille, or a copy posting to you in another format, please contact us by email at england.nhs.participation@nhs.net or use the contact form or telephone 0113 825 0861.

A much longer, analytical report, which also includes ‘free text’ responses, is also available:

Analytical Report on the consultation ‘making health and social care information accessible’ – summer / autumn 2014 also available as PDF document.

During the consultation period, we worked with some voluntary organisations to host some workshops so that patients, service users and carers with information and/or communication needs could have their say.

Voluntary sector events

Sense hosted an event for deafblind people to have their say on 28 August. The Royal National Institute of Blind people (RNIB) hosted events on 15, 19 and 23 September in Newcastle, London and Birmingham. SignHealth hosted events with the d/Deaf community on 22 September in Bristol. The notes from these events will are available below:

CHANGE events

CHANGE also held events for people with learning disabilities in October 2014 in Coventry, Leeds, London, Manchester and Darlington. The report from these events, and an easy read report are available below:

  • Report of five national consultation events held with people with learning disabilities as part of the consultation on the Accessible Information Standard: Word document and PDF document.
  • Report of five national consultation events held with people with learning disabilities as part of the consultation on the Accessible Information Standard – easy read (coming soon).

Other organisations also held events to support people to contribute to the consultation, including Sight Service Gateshead and South Tyneside, and Bradford Talking Media and Bradford Strategic Disability Partnership. The notes from these events are available below:

  • Notes from Bradford Talking Media and Bradford Strategic Disability Partnership Accessible Information Standard Consultation Workshop on 03.10.14: Word document and PDF document.
  • Notes from Sight Service Gateshead and South Tyneside Accessible Information Standard Consultation Workshop on 30.10.14: Word document and PDF document.

If you have a query about the accessible information standard or would like to get updates sent to you, please contact us by using this online form, or email england.nhs.participation@nhs.net or telephone 0113 825 0861.

Engagement

From November 2013 to 21 February 2014 we asked people for their views via three online surveys, so we could find out what different people think. We also worked in partnership with key national charities to support different groups of people to have their say. The report of engagement activity is available in a range of formats:

If you would like a copy of this report in an alternative format such as braille, or a copy posting to you in another format, please contact us by email at england.nhs.participation@nhs.net or use the contact form or telephone 0113 825 0861.

A much longer, analytical report, which also includes ‘free text’ responses, is also available: Report on selected questions from the NHS England Accessible Information Surveys: May 2014, also available as PDF document.

As part of the engagement activity, workshop discussion events were hosted by:

The notes from these workshops are available below:

Sense have produced a short video about the workshop they hosted, this is available on their website.

CHANGE have produced a report of the five focus groups they held, and an easy read summary. They have also produced a short video about the involvement of people with learning disabilities in this work. This is available their website.

In addition, two workshops took place with d/Deaf service users in Wandsworth and the notes from these discussions are now available: