NHS England are working together with the National Children’s Bureau as a data processor on a project for an Annual Health Checks (AHC) Focus Group, an initiative to explore the views of children and young people aged 14-19 years with a learning disability, and to support them to co-design communications and materials to improve the quality of these services and make them more accessible. NHS England is responsible as a data controller for the processing of personal data for the purposes of the AHC Focus Group project.

Purposes for processing

We collect personal data from children and young people and their families or carers to participate in the AHC focus group through the sharing of thoughts and experiences of AHC to highlight key themes and points raised.

Participants who agree to take in part will have their discussions recorded for a video resource on AHC, which will be shared with NHS health professionals across all the NHS for training purposes, which includes sharing on NHS websites, and anonymised quotations through NHS social media channels.

Categories of personal data

The following types of personal data are processed:

• Application form: name, contact details, date of birth, participation access needs.
• Equality and Diversity monitoring: disability, health impairments, ethnicity, religion. This data is collected separately to application to ensure anonymity.
• Video: Within the above activities we will be recording the focus group to be used in a video resource for NHS healthcare professionals, we will therefore be collecting personal data regarding your experiences in video format. NHS England will use the video for:
• Training: shared with NHS health professionals across all the NHS for training purposes
• Social media: including, Facebook, Twitter, Instagram and YouTube (anonymised quotes only)
• NHS England website

National Children’s Bureau will be collecting quotes during these activities. These quotes will not be identifiable to individuals and will be used by National Children’s Bureau and NHS England for 5 years in the following ways:

• Used in the project report National Children’s Bureau submits to NHS England for this project
• Used in promotional materials, bids and other reports, training, and on social media by National Children’s Bureau and NHS England

Legal basis for processing

For UKGDPR purposes NHS England have a lawful basis of Article 6(1)(a) Consent for the processing of application forms and videos for the purposes of the AHC review. NHS England has a further lawful basis of Article6(1)(e) – ‘…exercise of official authority…’ arising from a statutory duty to secure continuous improvement in the quality of service and to promote education and training (of health and care staff), which will apply to the processing of the videos for NHS staff training purposes and reporting purposes.

NHS England have a lawful basis for processing special category personal data under UKGDPR Article 9(2)(a), explicit consent.

Data recipients

Your personal data is received and used by:

• NHS England (video and reporting)
• National Children’s Bureau (application, video and reporting)
• Other voluntary sector organisations such as Mencap, National Development Team for Inclusion and Contact (video)

Retention period

Your data will be stored for a period of six years following project end in accordance with NHS England’s corporate retention schedule.