We started our work on overmedication with royal colleges. That work focused on the overmedication of adults with a learning disability. We have now done a new piece of work which looks at how we can support children and young people with a learning disability, autism or both better.
Through STAMP we want to:
- make the lives of children and young people with a learning disability, autism or both who are prescribed psychotropic medications better.
- make sure that children and young people who need medication can get it for the right reason, in the right amount for as short a time as possible.
- help people to understand more about these medications and have the confidence to ask why they are needed.
- make more non-medication treatments and support available.
- make sure the person with their family and paid carers are involved in any decisions to start, stop, reduce or continue taking them.
- get more children and young people with a learning disability, autism or both to have an annual health check starting from the age of 14.
Who is involved in STOMP-STAMP?
STOMP-STAMP was launched in December 2018 by NHS England and The Royal College of Paediatrics and Child Health.
These organisations made a pledge at the launch event:
- The Royal College of Paediatrics and Child Health (RCPCH)
- The British Association of Childhood Disability (BACD)
- Council for disabled children (CDC)
The pledge was:
We pledge to ensure that children and young people with a learning disability, autism or both are able to access appropriate medication (in line with NICE guidance,) but are not prescribed inappropriate psychotropic medication. Regular and timely reviews should be undertaken so that the effectiveness of the medication is evident and balanced against potential side effects. This will mean that children and young people are only getting the right medication, at the right time, for the right reason.
We, the undersigned, pledge to work together with children and young people with a learning disability, autism or both and their parents, carers and families, to take measurable steps to ensure that children and young people only receive medication that effectively improves their lives.
We pledge to set out the actions that our individual organisations will take towards this shared aim and report regularly on the progress we have made, ensuring that we can be held to account.
Filmed case studies
Ray James – Overview of STOMP-STAMP
Sarah and Owen Thomas – Owen’s story as part of STOMP-STAMP
Phil Wills – His son Josh’s story
Isabelle Garnett – Her son’s story
- STOMP-STAMP leaflet: empowering those caring for children and young people with a learning disability, autism or both to ask questions about their care and be more involved in discussion.
- STOMP-STAMP principles: Explanation of the principles and reasons to pledge.
- STOMP-STAMP pledge: The pledge which can be signed by people on behalf of organisations.
- STOMP-STAMP leaflet: Provides more information on what STOMP-STAMP is.
- STOMP-STAMP Member of Parliament (MP) pledge: Write to your local MP to ask to make changes with regards to STOMP-STAMP in your region.
- STOMP-STAMP blank ‘I pledge to’: Write your pledge, take a photo and tweet.
- NICE guideline [CG142] (August 2013) Autism spectrum disorder in under 19s: support and management
- NICE guideline [NG11] (May 2015) Challenging behaviour and learning disabilities: prevention and interventions for people with learning disabilities whose behaviour challenges
- The Challenging Behaviour Foundation: www.challengingbehaviour.org.uk
- Skills for Care: Behaviours which challenge
- BILD: CAPBS resources about Positive Behaviour Support