Learning disability and autism: our work

We work with the Government and other health and care organisations to make sure that people with a learning disability, autism or both who display behaviour that challenges, including people with a mental health condition get the best possible care.

This work is called ‘Transforming Care’ and is all about improving health and care services so that more people can live in the community, with the right support, and close to home.

In October 2015 we published our national plan – Building the Right Support , which is also available in easy read which sets out how we are making sure that people are getting the right care, in the right place at the right time.

Since that report was published we have made a lot of progress but we know there is a lot more still to do.

Listening to, and learning from, people’s experiences is an important part of our work. In February 2019, NHS England and Pathways Associates published a document called Beyond The High Fence, which was co-produced with people with a learning disability and autistic people who are, or have been, in hospital.

This piece of work was led by Gavin Harding MBE, a learning disability adviser for NHS England, who has personal experience of being in hospital himself. It is written for specialist commissioners, clinical commissioning groups, local authorities and anyone working in the criminal justice system. People share their lived experience and offer their views on what more needs to happen to improve quality of care and support people to make a successful return to their communities.

How is care being transformed?

Our work includes lots of different projects which are helping to improve the lives of people with a learning disability, autism or both.

Find out more about the ways how we are transforming care and improving health across the country and in your local area.

Who makes decisions on the transforming care programme?

The work of the programme across the health and social care system is managed by the Transforming Care Delivery Board (TCDB) which includes people from each of the six partner organisations leading the transforming care programme nationally.  They are:

  • NHS England
  • The Association of Directors of Social Services
  • The Care Quality Commission
  • The Department of Health
  • Health Education England
  • The Local Government Association (LGA)

Minutes of the Transforming Care Delivery Board are available on request – please email england.learning.disability@nhs.net.

Learning Disability and Autism Programme: Data and information

The NHS Long Term Plan works to improve the health of people with a learning disability, people who are autistic or both, and to support them to live well at home. This publication brings together key data from health services to show the performance of the NHS in delivering our Long Term Plan commitments.

View the Learning Disability and Autism Programme: Data and information