Starting Out
Referrals
Derian House Hospice – make a referral
Francis House Hospice – make a referral
Rainbow Trust – make a referral
Claire House Hospice – make a referral
Factsheets and Information
Family Factsheet Complete Pack – includes Care Planning in Advance; Child Death Overview Process; Parent Support Groups; Grants and Wishes; Emotional Support and Counselling, Transport; Aids and Equipment; Spiritual, Religious and Cultural Wishes; Benefits; Siblings; Charities for Children with Cancer; Mental Capacity Act; Talking with Your Child; When a Child Dies; Transition to Adult Services; Lasting Power of Attorney and Deputyship.
Who’s Who – a guide for families
Perinatal Pathway for Babies with Palliative Care Needs
Children’s Palliative Care Definitions
Tools
The Diversity Toolkit (Together for Short Lives)
A toolkit to support ventilated children and young people in children’s hospices
Neonatal Palliative Care Pathway
NICE Guidance: End of life care for infants, children and young people with life limiting conditions
Prompt sheet of local documents that need to be inserted
Links