The Health and Social Care Data Public Panel is a group consisting of patient and professional representatives, with an interest in patient data.

The main purpose of the group is to have a regular forum to share ideas, concerns and best practice around the use of health data, as well as invite views on the best ways to engage with patients and the wider public in an accessible way.

The group shapes communications content and plans for public engagement and supports the development of credible and accessible materials.

The Panel includes representation from a diverse range of patient and public representatives (known as lay members), supported by organisations who champion the voice of the public and patients:

• Office of the National Data Guardian
• Understanding Patient Data
• Cancer Research UK (CRUK)/Association of Medical Research Charities (AMRC)
• The National Care Forum
• Patient and public representatives (known as lay members)

See the Health and Social Care Data Public Panel meeting papers for more information.

The FDP check and challenge group is a stakeholder advisory group which provides strategic advice to NHS England re: the NHS Federated Data Platforms programme of communications, engagement, and transparency. It was established in November 2023.  

The group meets monthly and is attended by members from a range of organisations with knowledge and expertise regarding health data, patient and public voice, data security and the health system, including:

• National Voices (Independent Chair)
• Office of the National Data Guardian
• Association of Medical Research Charities
• Nottingham University Hospital Trust
• Healthwatch England
• Understanding Patient Data
• Royal College of Surgeons
• Academy of Medical Royal Colleges
• Patients Association
• NHS Frimley
• North West London Integrated Care System
• Information Commissioner’s Office
• UNISON
• BMA
• RCGP
• NHS England
• Department of Health and Social Care
• NHS Confederation
• TOD forum
• System forums
• Systems delivery forum

Participation in the group should not be viewed as any organisation being supportive of the programme. The group is embedded in both the programme governance arrangements and in the communications and engagement strategy for the NHS Federated Data Platform Programme.

See the Terms of reference, which defines the role of the Check and Challenge Group, membership, and operating model. Alongside the action notes of the group meetings for more information.

Delivered on the Centre of Excellence, this delivery forum provides system leads the opportunity to shape NHS Federated Data Platform product development and boost platform adoption. Attendees will receive exclusive updates, participate in live demos of deployed products, and stay informed on new capabilities. Please contact england.fdp@nhs.net to be added to the invite.

The purpose of the NHS Federated Data Platform Clinical Advisory Group is to ensure there is a clinical voice and provide clinical expertise and advice to the programme to ensure NHS Federated Data Platform is aligned and supports the achievement of clinical goals.

The Advisory Group provides a forum for members to challenge, feedback, advise, and guide in the development and delivery of the NHS Federated Data Platform (FDP) programme and implementation of national, regional, and local products to deliver and optimise benefits for patients and clinical staff.

Additionally, the group will provide early input and advice around the use of new technologies, particularly Artificial Intelligence (AI) and machine learning, from a clinical perspective. New roadmap suggestions for new technologies can be tested with this group during early stages of the product lifecycle.

The Group is chaired by The Interim National Medical Director for Transformation at NHS England, and the group meet on a quarterly basis.

The Data Governance Group (DGG) was established by NHS England to provide programme oversight to the approach to data processing and sharing including the lawful basis, across all instances of the NHS Federated Data Platform and NHS Privacy Enhancing Technology.

The Transforming Operational Delivery User Forums bring together clinical leaders, data professionals, and operational managers from community, mental health, and children and young people (CYP) services to co-design NHS Federated Data Platform solutions beyond acute care.

These monthly forums provide a space to review proposals, share feedback, and influence the development of evidence-based NHS Federated Data Platform solutions that improve care quality and transform service delivery for patients and staff.

How to get involved

Community, mental health, and CYP professionals are invited to contribute their expertise to developing targeted data-driven healthcare solutions.

User forums – we welcome trust representatives from operational, business intelligence, digital and clinical teams, interested in informing NHS Federated Data Platform solutions and user requirements

Steering groups – we welcome trust senior leadership, programme leads, national data and policy leads and subject matter experts to oversee progress, share insights and support key decision making.

Please contact niamh.brooks3@nhs.net  to join relevant forums and help shape patient-focused tools for these specific service areas.

Engagement forums