Specialised haemoglobinopathy services

NHS England have now commissioned the providers of specialised haemoglobinopathy services, haemoglobinopathy coordination center’s for both Sickle Cell Disease and Thalassemia, and the National Haemoglobinopathy Panel following a review of haemoglobinopathy services. These services are listed below, and are currently in the process of mobilising services following contract award. Generic email addresses for the HCCs will be added in due course.

Sickle Cell Disease – Haemoglobinopathies Coordinating Centres (HCCs)

  • North West: Manchester University NHS Foundation Trust
  • North East and Yorkshire: Sheffield Teaching Hospitals NHS Foundation Trust in partnership with Sheffield Children’s NHS Foundation Trust
  • East Midlands: University Hospitals of Leicester NHS Trust
  • West Midlands: * Sandwell & West Birmingham Hospitals NHS Trust, and sub-contracting to Birmingham Women’s & Children’s Hospital.
  • East London and Essex: Barts Health NHS Trust
  • South East London and South East: King’s College Hospital NHS Foundation Trust in partnership with Guys & St Thomas’ NHS Foundation Trust
  • West London: Imperial College Healthcare NHS Trust in partnership with London North West University Healthcare NHS Trust and St George’s University Hospitals NHS Foundation Trust
  • North Central London and East Anglia: University College London Hospitals NHS Foundation Trust in partnership with Whittington Health NHS Trust and North Middlesex University Hospital NHS Trust
  • Wessex and Thames Valley: Oxford University Hospitals NHS Foundation Trust
  • South West: University Hospitals Bristol NHS Foundation Trust

*contract currently being finalised with Trust

Thalassemia – Haemoglobinopathies Coordinating Centres (HCCs)

  • North: Manchester University Hospitals NHS Foundation Trust
  • Midlands: * Sandwell & West Birmingham Hospitals NHS Trust, and sub-contracting to Birmingham Women’s and Children’s Hospital.
  • London and South East: Barts Health NHS Trust
  • London, South Central and South West: University College London Hospitals NHS Foundation Trust in collaboration with Imperial College Healthcare NHS Trust, St George’s University Hospitals NHS Foundation Trust and London North West University Healthcare NHS Trust.

National Haemoglobinopathy Panel (NHP)

  • King’s College Hospital NHS Foundation Trust in partnership with Guys and St Thomas’ NHS Foundation Trust

Specialist Haemoglobinopathies Teams (SHTs)**

London

  • Barts Health NHS Trust
  • London North West University Healthcare NHS Trust
  • North Middlesex University Hospital NHS Trust
  • Guy’s and St Thomas’ NHS Foundation Trust
  • Lewisham and Greenwich NHS Trust
  • Croydon Health Services NHS Trust
  • St George’s University Hospitals NHS Foundation Trust
  • King’s College Hospital NHS Foundation Trust
  • Whittington Health NHS Trust
  • Homerton University Hospital Foundation Trust
  • University College London Hospitals NHS Foundation Trust
  • Imperial College Healthcare NHS Trust
  • Barking, Havering and Redbridge University Hospitals NHS Trust are working towards SHT status

Midlands and East

  • University Hospitals of Leicester NHS Trust
  • Nottingham University Hospitals NHS Trust
  • Birmingham Women’s & Children’s Hospital NHS FT and Sandwell & West Birmingham Hospitals NHS Trust

North

  • Manchester University NHS Foundation Trust
  • Royal Liverpool and Broadgreen University Hospitals NHS Trust & Alder Hey Children’s NHS Foundation Trust (joint SHT)
  • Sheffield Teaching Hospitals NHS Foundation Trust & Sheffield Children’s NHS Foundation Trust
  • Leeds Teaching Hospitals NHS Trust*
  • The Newcastle upon Tyne Hospitals NHS Foundation Trust

* Bradford Teaching Hospitals NHS Foundation Trust continues to provide a Local Haemoglobinopathy Service (as a high prevalence area for haemoglobinopathies), with patients requiring specialist input into their care being supported by Leeds Teaching Hospitals NHS Trust. 

**There are some contracts still being discussed between Trusts and regional teams.

South

  • University Hospitals Bristol NHS Foundation Trust
  • Oxford University Hospitals NHS Foundation Trust
  • University Hospital Southampton NHS Foundation Trust