B05. Children and Young Adult Cancer Services

Scope

Membership

Chair: Dr Rachael Hough, Consultant Haematologist and Transplant Physician, University College London Hospital’s NHS Foundation Trust.

Dan Stark, North
Bernadette Brennan, North
Richard Grundy, Midlands & East
Mariam Jafri, Midlands & East
Darren Hargrave, London
Julia Chisholm, London
Anne Davidson, South
Caroline Furness, South
Vicky Holden, Lead Pharmacist
Caroline Osborne, Lead Pharmacist
Dara de Burca, Patient & Public Voice
Pam White, Patient & Public Voice
Simon Fuller, Patient & Public Voice
Nicola McCulloch, Lead Commissioner, Nicola.mcculloch@nhs.net

Guides to services

NHS England, Teenage Cancer Trust and CLIC Sargent have developed a helpful introduction to services for teenagers and young adults with cancer. It explains the general standards of care to expect from the NHS, and offers some information that may help in making choices about care.

Products

A key part of the CRG’s work is the delivery of the ‘products’ of commissioning. These are the tools used by the 10 Hub Commissioning Teams to contract services on an annual basis.

Service Specifications

Service specifications are important in clearly defining the standards of care expected from organisations funded by NHS England to provide specialised care. The specifications have been developed by specialised clinicians, commissioners, expert patients and public health representatives to describe both core and developmental service standards. Core standards are those that all funded providers should be able to demonstrate, with developmental standards being those which may require further changes in practice over time to provide excellence in the field.

The following service specifications fall within the scope of this CRG:

Policies

A commissioning policy is a document that defines access to a service for a particular group of patients. A NICE Technology Appraisal Guideline on the same topic will replace, or be incorporated into, a commissioning policy as appropriate. These are important documents that are developed to ensure consistency in access to treatments nationwide.

The following policies fall within the scope of this CRG:

Reviewing cancer services for children and young adults

The Cancer Taskforce report highlighted several areas for improvement in the provision of services for children and young people with cancer to ensure a step-change in clinical outcomes and patient experience.

NHS England, through its Children and Young Adult Cancer Services Clinical Reference Group (CYA CRG), has now begun work on a national service review which aims to deliver the recommendations set out within the Cancer Taskforce report and drive improvements in clinical outcomes and service experience for patients. The review will include a significant focus on the designation of, and relationship between, Primary Treatment Centres (PTCs) and Shared Care Teams, as was recommended within the Cancer Taskforce report.

We will be keeping people updated as the review progresses, including opportunities for getting involved. To receive regular updates you can sign up as a registered stakeholder for the CRG for Cancer Services for Children and Young Adults.