E05. Congenital heart services

Scope

Adult Congenital Heart Disease (ACHD)

This is a Lead and Inform Clinical Reference Group (CRG).
Congenital heart disease (CHD) is one of the major categories of illness that, if treated, can restore health and improve quality of life. Adult Congenital Heart Disease (ACHD) affects people aged 16 and over living with a heart defect acquired during fetal development.

The demography of CHD is changing and this is largely as a consequence of successful cardiac surgery in childhood; there are increasing numbers of adults with CHD with a prevalence of more than 4 per 1000 adults. The number of ACHD patients with complex disease is increasing with 10% of the population now falling within the complex group.

Paediatric Cardiac Services

CHD constitutes the bulk of the paediatric cardiac workload. Currently 5–9 babies in every 1000 born in England will suffer from some form of CHD. In 2012 this resulted in 4716 paediatric cardiac surgical procedures. Recent data suggests a continuing increase can be expected in the number of paediatric cardiac surgical procedures beyond previous estimates.

Membership

Chair: Rafael Guerrero, National Specialty Adviser (NSA) for Congenital Heart Services

Clinical Members are currently being appointed.

  • Marion Eaves, Lead Commissioner

Products

A key part of the CRG’s work is the delivery of the ‘products’ of commissioning. These are the tools used by the 10 Hub Commissioning Teams to contract services on an annual basis.

Urgent Policy Statements

Service Specifications

Service specifications are important in clearly defining the standards of care expected from organisations funded by NHS England to provide specialised care. The specifications have been developed by specialised clinicians, commissioners, expert patients and public health representatives to describe both core and developmental service standards. Core standards are those that all funded providers should be able to demonstrate, with developmental standards being those which may require further changes in practice over time to provide excellence in the field.

The following service specifications fall within the scope of this CRG:

Get involved

If you are interested in the work of the specialised paediatric allergy, immunology and infectious disease CRG or its NPOC, you can register as a stakeholder.

For details on our latest consultations please visit the NHS England consultation hub.

Get in contact

For any questions or queries relating to the work of the specialised paediatric allergy, immunology and infectious disease CRG or its NPOC, please contact: england.npoc-womenandchildren@nhs.net