Specialised paediatric palliative care

This is a Respond and Advise Clinical Reference Group (CRG).

Specialised paediatric palliative care services provide palliative and end of life care to babies, children and young people with life-threatening or life shortening conditions whose needs exceed what can be provided by core or universal services, for example, because they require complex interventions or have multiple complex problems.

Scope

This clinical reference group covers:

  • Services for babies, children and young people with life-threatening or life-shortening conditions who require specialised palliative care.

Membership

A clinical lead is currently being recruited.

Products

A key part of the CRG’s work is the delivery of the ‘products’ of commissioning. These are the tools used by the 10 Hub Commissioning Teams to contract services on an annual basis.

Service specifications

Service specifications are important in clearly defining the standards of care expected from organisations funded by NHS England to provide specialised care. The specifications have been developed by specialised clinicians, commissioners, expert patients and public health representatives to describe both core and developmental service standards. Core standards are those that all funded providers should be able to demonstrate, with developmental standards being those which may require further changes in practice over time to provide excellence in the field.

The following service specifications fall within the scope of this CRG:

Get involved

If you are interested in the work of the specialised paediatric palliative care CRG or its NPOC, you can register as a stakeholder.

For details on our latest consultations please visit the NHS England consultation hub.

Get in contact

For any questions or queries relating to the work of the specialised paediatric palliative care CRG or its NPOC, please contact: england.npoc-womenandchildren@nhs.net