Personal health budgets in end of life care

NHS England is working with five sites to test the use of personal health budgets in the end of life pathway. This will include how to modify local assessment processes to ensure an upfront indicative budget is in place quickly and to allow people with very limited life expectancy to put their requirements in place.

East Lancashire CCG

They have set up their pilot with their integrated neighbourhood team in Ribblesdale with the support of the GP practices. Their first step is training and awareness raising of the local professionals and care providers and developing a how to guide on personal health budgets.

Warrington CCG

This work is part of their whole system review and the start of their plan to redesign their local end of life services, their three key areas of this are people with neurological conditions, short breaks and respite for children. Their initial work is to work with the local hospice and piloting hospice at home providing the whole package through a personal health budget.

South Derbyshire CCG

This project is aligned to a programme of transformation focused on the development and investment of local community based services that take hospice care to the patients and de-medicalise dying. The work is starting in one locality, Swadlincote, across health, social care and the voluntary sector in association with their local hospice and the NMU day unit.

Horsham and Mid Sussex CCG and Crawley CCG

Here the work is forming part of the development of the wider programme of transformation for patients with complex long term conditions. It will test the viability of an enhanced pathway between complex LTCs locality MDTs and the traditional end of life teams. The work seeks to align the team’s processes with EOL planning, to bring forward the conversations and subsequent care choice into the last 12 months of life rather than the last few weeks of life.

Northern, Eastern and Western (NEW) Devon

New Devon CCG are looking to redesign the pathway for personal health budgets at the end of life, to streamline processes, including reviewing current processes used in CHC to ensure they are appropriate for the end of life. To work with their local volunteer agencies to develop local expertise in support planning.

The Network

In addition to this there is a growing network of other interested leads in end of life, PHB and associated work that form an email network, these are currently

  • Birmingham Cross City CCG
  • Islington CCG
  • Oxfordshire (CHC Team in Oxford Health NHS FT and commissioners at CCG)
  • SW Strategic Clinical Network Lead
  • West Suffolk CCG and Ipswich and East Suffolk CCG
  • Camden
  • Swindon
  • Luton IPC lead
  • Independent Lives West Sussex

If any other areas would like to be on the email group mail, please contact Suzanne.jones20@nhs.net the national project lead.